Resources

Helpful resources to support your journey

Child looking thoughtful at the dinner table

Talking to your doctor

For Bardet-Biedl syndrome

If you feel that you or someone you care for may have a rare genetic condition that causes obesity, it’s important to talk to your doctor. To help you prepare, download a doctor discussion guide.

Download a BBS discussion guide:

Video library

Rare genetic conditions that cause obesity can impact people in many ways. We invite you to explore the stories of some members of the community who have chosen to share their experiences.

Olivia, Adalissa, and Solomon's Story video

Olivia, Adalissa, and Solomon's Story

Leigh and Izzy's Story video

Leigh and Izzy’s Story

Amy and Alex's Story videos

Amy and Alex’s Story

Denise, Evan, Drake, and Everett’s Story video

Denise, Evan, Drake, and Everett’s Story

Karen and Nate's Story video

Karen and Nate’s Story

Molly and Joshua's Story video

Molly and Joshua’s Story

Rare disease advocacy organizations

There are several independent organizations that work to provide education and resources for people living with rare diseases, including rare genetic conditions that cause obesity. Below is a list of organizations that may offer support:

Advocacy organizations for BBS