Resources
Helpful resources to support your journey
Talking to your doctor
For Bardet-Biedl syndrome
Could it be Bardet-Biedl syndrome?
Download a doctor discussion guide to help you prepare for a conversation with your doctor.
Talking about hunger
Download a symptom checklist
Use this checklist to talk to your doctor about constant, hard-to-control hunger.
For other rare genetic conditions that cause obesity
Could it be a different rare genetic condition that causes obesity?
Download a doctor discussion guide to help you prepare for a conversation with your doctor.
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Stay up-to-date on information related to rare diseases that cause obesity.Video library
Rare genetic conditions that cause obesity can impact people in many ways. We invite you to explore the stories of some members of the community who have chosen to share their experiences.
Olivia, Adalissa, and Solomon's Story
Leigh and Izzy’s Story
Amy and Alex’s Story
Denise, Evan, Drake, and Everett’s Story
Karen and Nate’s Story
Molly and Joshua’s Story
Rare disease advocacy organizations
There are several independent organizations that work to provide education and resources for people living with rare diseases, including rare genetic conditions that cause obesity. Below is a list of organizations that may offer support:
